Twilight

November 18th, 2008

... or the one about how I wrote a post next to my father's death bed.

The Gatehouse Hospice Unit

Yesterday I said I’d try to write something everyday, and the funny thing is now writing is the only thing keeping me from losing my shit in its entirety.

I’m writing this sitting in the recliner at the surprisingly comfortable Gatehouse Hospice. To my right is Dr. William Harold Sprinsky, Born 6/26/1939. Externally he is placid. Inside, I don’t know. I’m probably right in guessing he’s anxious for it to all be over with. My gut tells me I am right.

He’s laying in the hospital bed next to me, breathing is almost metronome like, 3 seconds from in to out. I was going to go home. I was going to curl up and cry around my fat fuzzy dog who barks too much. I fetched Wegmans subs for dinner (OmNomNom!!!) and used the soporific effects of Ommegang’s Three Philosophers on my mother and myself. This place is amazingly warm and comforting, I can’t imagine being in a typical sterile hospital environment. It’s much easier to be peaceful and gain some perspective here.


21:24 He settles a bit.
21:25 “What the hell is going on?”
21:26 He settles again.
21:27 “What the hell is going on?”
21:28 <uncontrollable hiccups>
21:30 I go get the nurses…

The hiccups, oh god the hiccups he’s having, wretched things. “Goddamn miserable cock suckers” he says. I know he means the hiccups, and somehow that’s a comfort.

This last part of life, this most infuriating part for me because it is just so absolutely worthless in terms of it’s contribution to the overall beauty and vibrance of what a life is. This morning he agreed with my mother that it would be better if it were just over with. His mind has made up the decision, what’s left is the ride to his body catching up with what his mind has already determined.

I look over, I can’t see his eyes, his water cup is in the way. I move it. He looks at me. I tell him I couldn’t see his face, and he looks so handsome with a beard, he always gave me shit about having a beard.

I fetched the nurses in regard to the hiccups, thorazine on the list. I gave them the schpiel about how much he hates drugs. He probably heard me. He’d probably be upset that I tried to pull a fast one on him, if he were lucid enough to realize it. The nurses just came in and offered drugs, but left having readjusted him to be a bit more comfortable. He’s no longer lucid enough to say that for himself, but the thoughts are there. He can’t get them out. It must be infuriating. But he is comfortable, and still and back to regular but labored breathing for now.

What hit me so hard today, while I listened to dad and his physician discuss the plan to keep him comfortable in whatever time he has left, was a realization. I realized that this was the twilight hour, the last very bit of life before it’s all over and done with. And he wasn’t actively fighting anymore, maybe because he’s completely out of energy. I realized that he hadn’t eaten, let alone chugged an old people energy drink (an ensure) in more than 24 hours. Water intake was minimal. From a guy who did everything he knew he had to do during chemo, and still knows that water and food are essential for life, to refusing those. He’s ready to let go. I’m ready to let him go, and yet it still goes on. That’s the scary part I can’t seem to wrap my head around. I hope this goes quickly, there’s no benefit in drawing it out. I realized that my father was now essentially admitting that he is ready to die.

…And that’s the most I’ve cryed since he was diagnosed with pancreatic cancer in spring of this year. but I talked to one of dad’s good friends for about half an hour. It was like talking to one of my friends, but that’s because there’s a lot of similarity in us, and this particular friend is a family physician, so of course it was easy.

I am thankful my employer loves me to death, and whatever happens just happens, it will all work out and I will still be able to pay the bills and keep my job. I’d be working now if I had a packet data connection that would do more than trickle packets, but I don’t. I’d probably be doing shoddy work anyway. My mind is wandering, I’m going to shut up now.

Thanks for listening, I can feel the love.

9 Responses to “Twilight”

  1. Anneliese Says:

    Hi,
    I’m following you on twitter as miz_anneliese (for ID purposes). This has got to be so difficult, for everyone, and I’m so sorry to hear all that’s happened recently. At the same time, thank you for writing about it. It’s real and it’s raw and it’s incredibly meaningful. I don’t know you, but my thoughts are with you. May you all be strong and loving till the end.

    -Anneliese

  2. matt Says:

    Thank you. The writing helps me too. It’s more real that way, and easier when I share what’s going on in my head.

  3. Ryan C (Syro) Says:

    Matt, I’m glad you’re blogging about this. Most people won’t divulge such stuff online, but I think I know you well enough that this is helping.

    Keep it coming, write it out.

  4. Jon (Chloro) Says:

    I’m having a hard time putting this into words, but I just wanted to know how much respect and awe I have for how you’ve been dealing with everything. The grace and dedication you’ve shown through a flood of emotions is a tribute to your father and is truly the legacy he’ll leave behind. You’re a great man, Matt.

  5. Jen Says:

    Thank you for being so candid and honest about what’s happening. It’s a lesson for all of us…learning from you how to handle a parent dying, and learning from him how to die with dignity. I sincerely commend you on this post; it’s BEAUTIFUL.

  6. The Connery Says:

    We are all made from the stuff of stars, from it we are formed, to it we return.

    Youre a good man Matt, thank you for giving us a glimpse into things.

    We’re here for you.

  7. Kevin S Says:

    I’m really sorry for your loss. I’m here if you need to talk. You know how to get in touch with me.

  8. Kate Says:

    Matt, I’m sorry to say I didn’t get to read this ’til the day after. I guess I just didn’t realize how quickly this was going for you and your mother and father.
    I’m with Jon, I can’t believe how strong you’re being and it’s truly amazing. You’re taking all the great moments and memories and with the blogs and your photos, you paint such a pristine picture of every aspect of the man that is your father.
    I know your dad is proud of you. I know your mom is.
    I know your other family is proud of you, too.
    We’re here for you, we <3 you.
    You’re a far braver and stronger person than I.
    <3 you honey.

  9. Ed Says:

    Matt, I am very sorry for you loss. My thoughts are with you and your family.

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